CureSHANK holds community webinars informing families and other stakeholders regarding CureSHANK's latest projects and efforts that are accelerating the process of developing and bringing to clinical trials treatments for Phelan-McDermid Syndrome and SHANK-related disorders. Recordings of past webinars are accessible here.
CureSHANK is producing a series of short videos sharing the stories of individuals living with Phelan-McDermid Syndrome and their families. Each video highlights a particular aspect of the Phelan-McDermid experience. These videos are available to be used not only to spread awareness, but also as a tool to communicate, to regulators and others, the devastating impact of SHANK-related disorders and the resulting high level of unmet need. These videos are available here as well as on CureSHANK's YouTube channel.
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