CureSHANK Consortium

Business People

CureSHANK Consortium 

The mission of the CureSHANK Consortium is to facilitate a cooperative, globally aligned effort focused on the identification and development of novel approaches to enable successful clinical trials in SHANK-related disorders. Many organizations are working towards finding solutions to address Phelan McDermid Syndrome and other SHANK-related disorders. By bringing together these institutions and individuals working towards the same end we will all benefit through knowledge and experience sharing.  


Improving the quality of life of patients with SHANK-related disorders is our vision and the heart of our work. We seek consortium partners who share that vision and are willing to work with a sense of urgency and an earnest commitment to collaboration to achieve our vision.  


  • Optimize success of clinical trials

  • Develop and validate enabling technologies

  • Gain regulatory acceptance


We hosted a very successful kickoff meeting on April 12, 2022. If you are interested in joining the Consortium or would like to learn more, please contact us.