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Crowdfunding for CureSHANK

Our primary goal at CureSHANK is to accelerate the development of treatments for SHANK-related disorders. Our approach is to identify and fund projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field. We are fully funded by individual donors like you with a vested interest in finding treatments for PMS, and other SHANK-related disorders. To do our job well, we need support from everyone in our community - and we hope that extends to your community as well! 


Enter crowdfunding! Crowdfunding is the use of small donations from a large number of individuals to raise money for a cause. We provide the tools you need to make it easy to share your story and fundraising goals with your friends, family, and colleagues. Feel free to get creative.

Starting a campaign is super easy. All you need to do is complete this Google form or contact Abby Lievense at and say you’d like to start a CureSHANK campaign. She’ll take you through the steps, and you’ll have your campaign up and running in no time.

charles' birthday!

Help us celebrate Charles’ birthday with our family's annual fundraiser, in honor of our sweet son.  Your gifts will be used to support the upcoming EL-PFDD meeting and the operating expenses of the CureSHANK Consortium.



Giving Tuesday

Giving Tuesday is coming up soon - November 29, 2022.

GivingTuesday reimagines a world built upon shared humanity and generosity.

Please remember CureSHANK in your giving plans! 

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This could be
your event!

We would love to work with you to create your online crowdfunding campaign.


Please contact Abby Lievense at  She will work with you to create an amazing and impactful campaign. 

New Year Party


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