Together, we can turn promising science into real solutions for families.
Make your year-end gift today!
DOUBLE YOUR IMPACT!
Thanks to a generous donor, every dollar donated now through December 31 will be matched up to $30,000!
watch: a glimpse into life with pms
While so many of us live every day caring for a child or adult with PMS, others don’t have the lived experience to truly understand the complex and heartbreaking realities. Recently, Abby Lievense, CureSHANK’s co-founder and treasurer, allowed cameras into her home to capture what life is like with her son, Darus. It’s not easy to watch, but it shows why CureSHANK was founded, why we are relentless in our focus on turning promising science into real solutions for families, and why we need your help today. While this video centers on Darus and his story, it’s meant to represent all the many similar but unique stories of PMS families.
Together, today.
CureSHANK is at an inflection point — for the very first time, we may have multiple treatment options available to our families within a few years. From small molecules to gene therapies, to antisense oligonucleotides, we are within reach of the therapies we have been so desperately hoping for. There is still critical work to be done to get them across the finish line. CureSHANK is at the forefront of that effort, but we can’t do it alone.
WHY GIVE NOW?
Breakthroughs are within reach as scientists make real progress toward therapies for Phelan-McDermid syndrome. Your gift powers the critical steps—preclinical studies, trial design, and translating discoveries into treatments—ensuring that promising science moves quickly toward life-changing therapies for children and adults living with PMS.
Accelerate Science
We are thrilled to share that every donation made between now and December 31, 2025 will be matched dollar for dollar, up to $30,000, thanks to a generous CureSHANK donor.
Your support will help us unlock the full match and double the impact of every gift.
Will you help us reach the match?
DOUBLE YOUR IMPACT
Children and adults with Phelan-McDermid syndrome are losing precious time while waiting for treatments that don’t yet exist. Your support today fuels the breakthroughs of tomorrow—bringing us closer to therapies that can preserve skills, restore abilities, and give families hope for a brighter future.
CHANGE THE FUTURE
help us get the word out
Can you help us reach more people to increase Phelan-McDermid syndrome awareness and funds for cutting-edge science? It’s easy! Click the button below to download the graphic, and add your personal touch with a photo or image that you choose. Simply click and hover your image over the landscape image on the right side to pop it into the frame. Then, post your unique graphic to your social media channels with a link to www.cureSHANK.org/give2025.
Don’t forget to tag us @CureSHANK and use our hashtag #TogetherToday!
