It is the mission of CureSHANK to accelerate the development of cures and treatments for Shankopathies through research.
OUR MOTIVATION & APPROACH
The founders of CureSHANK are parents of children affected by Phelan-McDermid Syndrome [a shankopathy disorder], who believe that a better life for our children is within reach. CureSHANK works towards this goal through funding targeted research and holding scientific meetings to connect diverse stakeholders.
Our commitment to integrity means staying true to our mission, maintaining the highest levels of transparency in our investments in science and reporting our impact, and promoting scientific excellence.
We will work without delay to help bring patients the treatments they need.
We believe that collaboration is critical for the speedy and efficient accomplishment of our mission.