CureSHANK Webinars
UPCOMING
WEBINARS
In December 2023, Neuren Pharmaceuticals announced positive results from the phase 2 clinical trial of their NNZ-2591 in Phelan-McDermid syndrome patients.
At this exciting community webinar, Neuren will share more details about these promising results and explain the next steps for the PMS community as they enter phase 3 clinical trials!
PAST WEBINARS
community webinars
An Evening with
was held FEBRUARY 22, 2024
Unfortunately, we are not permitted to
share the webinar recording at this time.
We expect an updated FAQ from Jaguar soon that encompasses the questions asked during the webinar. Meanwhile, view the Current Jaguar FAQ and Community Letter.
Jaguar plans to present more information to the PMS community in late summer 2024.
Follow CureSHANK’s social media channels for updates,
and if you aren’t already receiving emails from CureSHANK…
In this video, Geraldine Bliss (president), Talya Emery Silva (vice president), and Trish Davidson (CureSHANK Consortium project manager) explain how our strategy of filling the translational research gap makes progress toward CureSHANK's purpose.
Resources for researchers
On February 3, 2023, the CureSHANK Biomarkers and Outcome Measures Consortium hosted the first webinar in our "Resources for Researchers" Series, the subject of which was the use of Induced Pluripotent Stem Cells (iPSC) in SHANK3 research.