Our Fundraisers
Los Angeles Marathon
CureSHANK is honored to be an Official Charity Partner of the 2026 Los Angeles Marathon presented by ASICS! Join us in March 2026 to run from the "Stadium to the Stars" as part of Team CureSHANK! This iconic 26.2-mile course begins at Dodger Stadium and winds through Downtown LA, Little Tokyo, Hollywood, Rodeo Drive, and more—finishing at the Avenue of the Stars, where the Finish Festival awaits!
RUN FOR OUR JENSON :: 9 MARATHONS IN 9 DAYS
This summer, Tom Giles will be running from Bath to Land’s End in Cornwall completing 9 marathons in 9 days to raise awareness of Phelan McDermid Syndrome and raise vital funds for CureSHANK. Our family and friends will know that our son Jenson (on the right of photo) has been diagnosed with Phelan McDermid Syndrome, so this is a cause incredibly close to our heart as all funds raised will go towards accelerating the development of life changing therapies and treatments.
RACE FOR RESEARCH 2025
A Global Challenge for PHELAN-MCDERMID SYNDROME (PMS)
Join a worldwide community uniting to raise $222,013 for breakthrough treatments for Phelan-McDermid syndrome.
Jackson’s Trivia night
Jackson’s Trivia Night was started seven years ago by Melissa McGrew and Todd Goldsmith, the loving and amazing parents of Jackson, who suffers with Phelan-McDermid syndrome.
RACING FOR CHARLES :: CHEVRON HOUSTON MARATHON & ARAMCO HALF MARATHON
My name is Nathan, and this year, an amazing group of my friends and I are starting Team CureSHANK to take on the Houston Marathon and Half Marathon for my older brother Charles, who has Phelan-McDermid syndrome. Growing up alongside Charles as he endured uncontrollable seizures and regression of his speech and other abilities has been heartbreaking. However, his incredible resilience has inspired myself and many others, and now, we’re stepping up to Race for Charles.
RUNNING FOR CAM :: COLUMBUS HALF MARATHON
I am Running for Cam in an effort to raise funds to support CureSHANK, a research advocacty organization expediting life-changing therapies for Phelan-McDermid syndrome (PMS), a highly disabling neurodevelopmental disorder. This unfortunate condition puts a lot of stress on my girlfriend’s family and to be able to raise money to help Cam and his Blippi-loving self is my aspiration! Cam loves strings and his smile shines bright. Being able to run a half marathon is a gift and I’d love to make a change while I’m doing it. Let’s lace up together to make Cam’s journey a little brighter! #runningforcam
“RUNNING WITH A HEART” SuGAR LAND ROTARY 5k & KIDS 1k
CureSHANK is honored to be the beneficiary of the 2024 Running with a Heart Sugar Land Rotary 5k! This fundraiser will occur near Houston, TX on February 3, 2024.