CureSHANK Community News: May 2026

Written By CureSHANK

This month, we're sharing key updates from across the CureSHANK community — from highlights of our 3rd annual PMS Drug Development Symposium to new research, clinical opportunities, and the first-ever Burden of Illness Study. Together, these efforts reflect growing momentum toward better understanding PMS and accelerating meaningful progress for individuals and families.

We are heartened to see the scientific community, PMS families, and patient advocates united by a shared mission to bring life-transforming therapies to individuals affected by PMS.

As always, get the full story here.

CureSHANK
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The PMS Diagnosis Gap: Why Many Individuals Remain Undiagnosed or Face Delays in Diagnosis