A Global Movement for PHELAN-MCDERMID sYNdrome (PMS)
THIS SUMMER, the race begins!
Join our worldwide community uniting to raise $222,013 for breakthrough treatments for PMS.
June - August 2025
RACE FOR RESEARCH 2025 is an all-summer, world-wide effort to raise $222,013 to accelerate research for Phelan-McDermid syndrome through races and challenges of all kinds.
This movement was inspired by Tom Giles, father to Jenson (PMS), who determined to run NINE marathons in NINE days (6/27-7/5) to raise funds for CureSHANK.
Our Global Challengers, across FIVE continents, are each running at least one day in solidarity with Tom’s efforts.
To learn more, register for the kick-off meeting on June 1.
The full landing page is coming VERY soon!
START A GLOBAL CHALLENGE
Are you a runner, walker, or backyard racer?
We are looking for families and individuals to become peer-to-peer fundraisers and help us meet our donation goal. If you would be interested in participating in this global movement, please sign up.
ALREADY PARTICIPATING IN A RACE?
We would be happy to provide CureSHANK merchandise to those running in support of our cause!
Email Brandonne@CureSHANK.org for further information.