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CureSHANK
Phelan-McDermid Syndrome
For Academia & Industry
Learn about our Initiatives
Our Research Grants
PMS Conceptual Model
EL-PFDD Meeting
CureSHANK Consortium
Funding Opportunities
Research Resources
Landscape Analysis for Industry
Participate in Research
Support Our Work
Our Fundraisers
Take Action
Fundraise Online
Plan an Event
2024 Raise for Reserach
Media
Real Family Stories
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PMSAD
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Our Partners
Financials
Contact Us
Meet Our Team
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Phelan-McDermid Syndrome
Folder: For Academia & Industry
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2024 Raise for Reserach
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News & Updates

Categories
  • Awareness 5
  • CLINICAL TRIALS 1
  • Funding 2
  • Learn More 5
  • Newsletters 1
  • Updates 6
CURESHANK SUPPORTS RARE DISEASE DAY
Awareness Abby Lievense 2/29/24 Awareness Abby Lievense 2/29/24

CURESHANK SUPPORTS RARE DISEASE DAY

Phelan-McDermid syndrome is highly under-diagnosed, but it is still a #raredisease!

We are happy to support #RareDiseaseDay on this rarest of days, the 29th of February!

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Running with a heart - sugar land rotary 5k
Awareness Abby Lievense 2/3/24 Awareness Abby Lievense 2/3/24

Running with a heart - sugar land rotary 5k

Thank you so much to Sugar Land Rotary Club for putting on a wonderful charitable 5k benefitting CureSHANK! Despite the rain and cold, the turnout at Running with a Heart - Sugar Land Rotary 5K near Houston, TX was substantial!

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Autism Awareness Day
Awareness Abby Lievense 4/1/21 Awareness Abby Lievense 4/1/21

Autism Awareness Day

SHANK3 is one of the top autism genes! Help us accelerate research by making a donation to CureSHANK in honor of Autism Awareness Month/Day. Thank you!

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Rare Disease Day Awareness
Awareness Abby Lievense 2/28/21 Awareness Abby Lievense 2/28/21

Rare Disease Day Awareness

While rare diseases may impact fewer people than widespread illnesses, they have a major impact on the lives they affect.

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Seizure Action Plan Awareness Week #SAPAW2021
Awareness Abby Lievense 2/10/21 Awareness Abby Lievense 2/10/21

Seizure Action Plan Awareness Week #SAPAW2021

Did you know - only 30% of adults have a seizure emergency action plan, yet 3.5 million Americans have epilepsy?

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CureSHANK has a singular purpose: To accelerate the development of treatments for Phelan-McDermid syndrome & SHANK-related disorders.

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